PhenX - systemic lupus erythematosus protocol 171001   64392-4

LOINC Code


LOINC code64392-4
namePhenX - systemic lupus erythematosus protocol 171001
descriptionThe System Lupus International Collaborating Clinics (SLICC)/American College of Rheumatology (ARC) Damage Index for Systemic Lupus Erythematosus is a method that physician investigators use to determine the extent of permanent damage to various body organs or organ systems due to lupus or to the treatment thereof. This method is widely used and allows the physician to determine if a person has had any nonreversible changes (i.e., damage) to organ systems. These changes have occurred since a person is being diagnosed with lupus, are not related to active inflammation, and are ascertained via a clinical assessment. Also, unless stated otherwise, these changes must be present for at least six months prior to the assessment. The SLICC /ARC Damage Index is a cumulative index that records damage that occurs in individuals with lupus, regardless of whether the damage can be definitively attributed to lupus or is due to another cause, such as a comorbid condition. Prior to completing this protocol, the PhenX Skin, Bone, Muscle and Joint Working Group (WG) notes that investigators must first confirm the presence of lupus in respondents. This can be done via the PhenX measure Autoimmune Diseases Related to Type 1 Diabetes. This measure uses one question to determine the presence of various autoimmune diseases (including lupus) in respondents or their children.
statusTRIAL

Fully-Specified Name

componentPhenX - systemic lupus erythematosus protocol 171001
property-
timePt  =  Point in time:  To identify measures at a point in time. This is a synonym for “spot” or “random” as applied to urine measurements.
system^Patient
scale-
methodPhenX

Additional Names

short nameLupus SLE proto

Basic Attributes

classPANEL.PHENX
type2  Clinical

Panel Components

66608-1Cataract [Reported]
66609-9Retinal change or optic atrophy [Reported]
66610-7Cognitive impairment [Reported]
66611-5Seizures requiring therapy for 6 months [Reported]
66612-3Cerebrovascular accident [Reported]
66613-1Cranial or peripheral neuropathy [Reported]
66614-9Transverse myelitis [Reported]
66615-6Estimated or measured glomerular filtration rate less than 50 percent [Reported]
66616-4Proteinuria greater than or equal to 3.5 gm in 24 hours [Reported]
66617-2End-stage renal disease [Reported]
66618-0Pulmonary hypertension [Reported]
66619-8Pulmonary fibrosis [Reported]
66620-6Shrinking lung [Reported]
66621-4Pleural fibrosis [Reported]
66622-2Pulmonary infarction [Reported]
66623-0Angina or coronary artery bypass [Reported]
66624-8Myocardial infarction [Reported]
66625-5Cardiomyopathy [Reported]
66626-3Valvular disease [Reported]
66627-1Pericarditis for 6 months, or pericardiectomy [Reported]
66628-9Claudication for 6 months [Reported]
66662-8Minor tissue loss [PhenX]
66663-6Significant tissue loss [PhenX]
66664-4Venous thrombosis with swelling, ulceration, or venous stasis [PhenX]
66665-1Gastrointestinal infarction or resection of bowel below duodenum, spleen, liver, or gall bladder [PhenX]
66666-9Mesenteric insufficiency [PhenX]
66667-7Chronic peritonitis [PhenX]
66668-5Stricture or upper gastrointestinal tract surgery [PhenX]
66669-3Muscle atrophy or weakness [PhenX]
66670-1Deforming or erosive arthritis [PhenX]
66671-9Osteoporosis with fracture or vertebral collapse [PhenX]
66672-7Avascular necrosis [PhenX]
66673-5Osteomyelitis [PhenX]
66674-3Scarring chronic alopecia [PhenX]
66675-0Extensive scarring or panniculum other than scalp and pulp space [PhenX]
66676-8Skin ulceration for >6 months [PhenX]
66677-6Premature gonadal failure [PhenX]
66678-4Diabetes [PhenX]
66679-2Malignancy [PhenX]

Associated Observations

LOINC codes that represent optional associated observation(s) for a clinical observation or laboratory test. A LOINC term may represent a single associated observation or panel containing several associated observations.

Member of these Panels

62896-6PhenX domain - Skin, bone, muscle and joint

History/Usage

first released
last updated2.66
last change typeNAM  - change to Analyte/Component
change reasonUpdated the PhenX ID from "PhenX." to "PX" in Survey Question Source field to align with the variable identifier used in the PhenX Toolkit.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.; Added the PhenX protocol ID to the Component to clearly define the protocol version for which this panel is based upon.

Related Names

LE
Lupus SLE proto
Pan
Panel
PANEL.PHENX
Panl
Pnl
Point in time
Random

Copyright © 2024 Regenstrief Institute, Inc. All Rights Reserved. To the extent included herein, the LOINC table and LOINC codes are copyright © 1995-2024, Regenstrief Institute, Inc. and the Logical Observation Identifiers Names and Codes (LOINC) Committee. See https://loinc.org/license for the full LOINC copyright and license.

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